Social media channels
Our social media channels
As a global organization we want to provide patients, families and health care providers with reliable information and enable them to share knowledge and experience with each other.
Closed Facebook groups are very suitable for this, especially when it comes to rare diseases such as CMTC and other vascular malformations.
Our members who have joined a number of these Facebook groups come from all over the world. Therefore, have a look at our Facebook groups and sign in. Also take a look at our Twitter channel.