Blog Katie Allen June 2023
Summer fun on vacation is just one of those childhood memories that glows the brightest. However, when you have a rare disease, there are a few handy tips for making it all fun in the sun. The first lesson I learned was to have extra medications, whether it’s cancelled flights or wildfire season in Canada, […]
Eurordis 2023 – Stockholm
Finally, Eurordis was able to organize a ‘real’ in person members conference. The last time this took place was in 2019 before the Corona pandemic. From May 25 to 27, 2023 250 people from all over Europe gathered in Stockholm, Sweden. 25th of May On the 25th of May there were 2 parallel sessions held: […]
ISSVA 2023 – Boston
The ISSVA (International Society for the Study of Vascular Anomalies) is a multidisciplinary international organization of doctors, scientists and healthcare providers united by an interest in vascular anomalies. The ISSVA organised a worldwide conference in Boston (USA) from 19 to 21 April. There were 279 participants physically present and 263 participants joined ‘online’. The title of the conference […]
VAC 2023 – Brussels
Organised by the DeDuve Institute in Brussels, Belgium, the Vascular Anomalies Conference took place from the 31st of January to the 3rd of February. One of the directors of the Institute is Prof. Dr. Miikka, Vikkula, who is also one of our advisors. There were around 220 people from around 15 countries present, including, among […]
Participate in groundbreaking research
As an organization, CMTC-OVM has been a member of the organization Global Skin for many years now. The GRIDD study (Global Research on the Impact of Dermatological Diseases) collects international data on the impact of skin (dermatological) disorders on the lives of patients. To collect this data, a new questionnaire “Patient-Reported Impact of Dermatological Diseases” […]
