In case of emergency
People with rare diseases may need special treatment in case of an emergency.
Think for example of a child with CMTC who gets an accident at school, on the street or in the car and is unconscious and therefore can not indicate that certain actions should or should not be performed. For this we have created a ‘medical alarm’ that the child can carry with him or that can be attached to the inside of a car window so that care providers receive the required information.
Here a template in MSWord format that anyone can download, fill and use.