Je kunt tekst op je scherm selecteren om ze hardop te laten voorlezen
nl Dutch
af Afrikaanssq Albanianam Amharicar Arabichy Armenianaz Azerbaijanieu Basquebe Belarusianbn Bengalibs Bosnianbg Bulgarianca Catalanceb Cebuanony Chichewazh-CN Chinese (Simplified)zh-TW Chinese (Traditional)co Corsicanhr Croatiancs Czechda Danishnl Dutchen Englisheo Esperantoet Estoniantl Filipinofi Finnishfr Frenchfy Frisiangl Galicianka Georgiande Germanel Greekgu Gujaratiht Haitian Creoleha Hausahaw Hawaiianiw Hebrewhi Hindihmn Hmonghu Hungarianis Icelandicig Igboid Indonesianga Irishit Italianja Japanesejw Javanesekn Kannadakk Kazakhkm Khmerko Koreanku Kurdish (Kurmanji)ky Kyrgyzlo Laola Latinlv Latvianlt Lithuanianlb Luxembourgishmk Macedonianmg Malagasyms Malayml Malayalammt Maltesemi Maorimr Marathimn Mongolianmy Myanmar (Burmese)ne Nepalino Norwegianps Pashtofa Persianpl Polishpt Portuguesepa Punjabiro Romanianru Russiansm Samoangd Scottish Gaelicsr Serbianst Sesothosn Shonasd Sindhisi Sinhalask Slovaksl Slovenianso Somalies Spanishsu Sudanesesw Swahilisv Swedishtg Tajikta Tamilte Teluguth Thaitr Turkishuk Ukrainianur Urduuz Uzbekvi Vietnamesecy Welshxh Xhosayi Yiddishyo Yorubazu Zulu
Login
Forgot?

Create Account
Already have an account?
Forget your password?
Remembered Password?
  • Home
  • Pedia
    • CMTC
      • Description
      • Photo gallery
      • Possible complications
      • Possible complications by location
      • Isolated and Classic CMTC
      • Laser treatment
      • Our long journey to the diagnosis CMTC
      • Abbreviations & definitions
      • Dr. van Lohuizen
      • CMTC articles
    • OVM
      • AV malformation
        • Surgical Resection of an Arteriovenous Malformation
      • Capillary malformation
      • CMTC (OVM)
      • CLOVES
      • Complex mixed malformation
      • Congenital hemangioma (NICH/RICH)
      • Diffuse Capillary Malformation with Overgrowth (DCMO)
      • Granuloma telangiectaticum
      • Hemangio-endothelioom
      • Infantile hemangioma
      • Klippel-Trenaunay
      • Lymphatic malformation
      • Port-wine stain
        • Young people with port-wine stains in high school
      • Stork bite
      • Sturge-Weber
        • The Effects of Surge Weber on Mouth and Teeth
      • Teleangiectasias
      • Tufted angioma
      • Venous malformation
      • Clinical features of vascular malformations and associated gene mutations
      • New Device Clears Veins in Cases of Serious Thrombosis
      • Multidisciplinary consultation
      • Treatment of Vascular Malformations with Interventional Radiology
      • Treatment 10%
      • Laser treatment OVM
    • Skin
      • Skin aging
      • Melanomas & moles
      • Skin therapy
      • UV radiation
    • Psychology
      • After birth
      • Reactions environment
      • State child
      • School and friends
      • After diagnosis
      • Potential impact of medical intervention on very young children
      • Anxiety and pain management in children
      • On the breach for a child-oriented approach
      • Medical supervision
      • Bullying
      • Learning to cope with your condition/vascular anomaly
      • Possible consequences
      • Acceptance
      • The beginning of the end of the relationship
      • Meet Chloe
      • Brother or sister ill
      • Live like an animal
      • Burden of disease
    • eHealth
      • Telehealth and medical diagnosis
      • Digital health
      • Virtual nurse
    • Genetics
      • The genetic cause of vascular malformations: an update
      • Genetics and vascular malformations
      • Reverse phenotyping in patients with capillary blood vessel abnormalities
      • One swallow doesn’t make spring (summer) yet
      • Searching for the genetic cause of vascular anomalies (such as CMTC)
      • CMTC and genetic mutations
      • Genetics glossary
    • Pedia other
      • Role of patient organisations in healthcare
      • European Patient Advocay Groups (ePAG’s)
      • European Reference Networks (ERN’s)
      • ISSVA classification
      • Decide together
      • Patient’s voice
      • Rare diseases barometer
      • New developments laser
      • Patient’s rights NL
      • Rating healthcare providers
      • Holistic person-centred care
      • State of the art activities rare diseases Europe
      • Sirolimus
        • Research for complications with sirolimus
        • Articles sirolimus
      • Alpelisib
        • Alpelisib approved by FDA for treatment of PROS
        • Alpelisib articles and video material
      • Foreign health care in Europe
  • Knowledge base
    • Links websites
      • European Reference Networks (ERN’s)
      • Skin diseases organisations
      • Other organisations
      • Patient websites
      • Collaboration
      • Vascular diseases organisations
      • Rare diseases organisations
      • Hospitals
    • FAQ’s
      • FAQ CMTC
      • FAQ DCMO
      • FAQ Psychology
      • FAQ Port Wine Stain
    • Videos
      • Information
      • Promotion
      • Other
    • Documents
    • News
      • Latest news
      • Events
      • External conferences intro
      • Newsletters
  • Members
    • Registration
      • Membership registration
      • Become a donor
      • One time donation
    • Medical advice
      • Personal medical advice
      • International Patient Center
      • Medical diagnosis facts
    • Member conferences
      • Netherlands
      • Canada
      • USA
    • Family Days
    • Spring meeting days
    • Personal stories
    • Blogs
    • Be informed
      • Social media
      • Social media channels
      • Social media free?
      • Newsletter
      • Medical alarm
      • Visit Netherlands
    • Ronald McDonald vacation homes
    • Family messages
  • Activities
    • Genetic research
      • Participation
      • Status
    • Information folders
      • Request brochures/booklets
      • AVM folder
      • CMTC folder
      • DCMO folder
      • KTS folder
      • Siblings folder
      • Psychology folder
      • After the diagnosis brochure
      • Parents Support Guide
      • Teachers brochure
      • VASCA Magazine
      • Conversation health care provider folder
      • General Practitioner brochure
      • Patient journey
      • Patient included
    • Online services
    • Patient advocacy
      • Overview per country
      • Experiences patient advocates
      • Encouragement program
      • Become patient advocate?
      • Agenda October 2023
      • Grandparents
      • Way of working
      • Training patient advocate
      • Report PA training 2022
    • Webinars
      • Overview & registration webinars
      • Webinar reports
    • External conferences
      • Conference participation
      • CORD
      • EADV
      • Eurordis
      • Genetic Alliance
      • Global Skin Foundation
      • ICORD
      • ISSVA
      • NORD
      • VBF
      • Rare diseases day (Netherlands)
      • Other conferences
    • Community voice
    • Projects
  • Organisation
    • About our organisation
      • Board
      • contact
      • Advisory council
      • Annual reports
      • Financial committee
      • Policy plan
      • Anniversary booklet 25 years CMTC-OVM
      • Budgets
        • Budget 2023
        • Budget 2022
        • Budget 2021
        • Budget 2020
        • Budget 2019
      • Certifications
      • Code of conduct
      • Influence & participation
      • Impact & range
      • Complaints
      • Internal regulations
      • Conflict of interests
      • Act on Management and Supervision of Legal Entities (WBTR)
      • Proclaimer
    • Advisors
    • Ambassadors
    • Collaboration
    • Privacy
      • Your rights
      • Statement
      • Access control
      • Data registration
      • Your privacy, our concern
      • Secure e-mail
      • Privacy & security tips
      • Our infrastructure
    • Donations
    • Sponsor
      • sponsors
    • Volunteer
      • Our volunteers
      • Profiles
      • Experience Experts
  • Community
    • Log in
    • Registration
  • One time donation
    Global non-profit patient organisation
    • Home
    • Pedia
      • CMTC
        • Description
        • Photo gallery
        • Possible complications
        • Possible complications by location
        • Isolated and Classic CMTC
        • Laser treatment
        • Our long journey to the diagnosis CMTC
        • Abbreviations & definitions
        • Dr. van Lohuizen
        • CMTC articles
      • OVM
        • AV malformation
          • Surgical Resection of an Arteriovenous Malformation
        • Capillary malformation
        • CMTC (OVM)
        • CLOVES
        • Complex mixed malformation
        • Congenital hemangioma (NICH/RICH)
        • Diffuse Capillary Malformation with Overgrowth (DCMO)
        • Granuloma telangiectaticum
        • Hemangio-endothelioom
        • Infantile hemangioma
        • Klippel-Trenaunay
        • Lymphatic malformation
        • Port-wine stain
          • Young people with port-wine stains in high school
        • Stork bite
        • Sturge-Weber
          • The Effects of Surge Weber on Mouth and Teeth
        • Teleangiectasias
        • Tufted angioma
        • Venous malformation
        • Clinical features of vascular malformations and associated gene mutations
        • New Device Clears Veins in Cases of Serious Thrombosis
        • Multidisciplinary consultation
        • Treatment of Vascular Malformations with Interventional Radiology
        • Treatment 10%
        • Laser treatment OVM
      • Skin
        • Skin aging
        • Melanomas & moles
        • Skin therapy
        • UV radiation
      • Psychology
        • After birth
        • Reactions environment
        • State child
        • School and friends
        • After diagnosis
        • Potential impact of medical intervention on very young children
        • Anxiety and pain management in children
        • On the breach for a child-oriented approach
        • Medical supervision
        • Bullying
        • Learning to cope with your condition/vascular anomaly
        • Possible consequences
        • Acceptance
        • The beginning of the end of the relationship
        • Meet Chloe
        • Brother or sister ill
        • Live like an animal
        • Burden of disease
      • eHealth
        • Telehealth and medical diagnosis
        • Digital health
        • Virtual nurse
      • Genetics
        • The genetic cause of vascular malformations: an update
        • Genetics and vascular malformations
        • Reverse phenotyping in patients with capillary blood vessel abnormalities
        • One swallow doesn’t make spring (summer) yet
        • Searching for the genetic cause of vascular anomalies (such as CMTC)
        • CMTC and genetic mutations
        • Genetics glossary
      • Pedia other
        • Role of patient organisations in healthcare
        • European Patient Advocay Groups (ePAG’s)
        • European Reference Networks (ERN’s)
        • ISSVA classification
        • Decide together
        • Patient’s voice
        • Rare diseases barometer
        • New developments laser
        • Patient’s rights NL
        • Rating healthcare providers
        • Holistic person-centred care
        • State of the art activities rare diseases Europe
        • Sirolimus
          • Research for complications with sirolimus
          • Articles sirolimus
        • Alpelisib
          • Alpelisib approved by FDA for treatment of PROS
          • Alpelisib articles and video material
        • Foreign health care in Europe
    • Knowledge base
      • Links websites
        • European Reference Networks (ERN’s)
        • Skin diseases organisations
        • Other organisations
        • Patient websites
        • Collaboration
        • Vascular diseases organisations
        • Rare diseases organisations
        • Hospitals
      • FAQ’s
        • FAQ CMTC
        • FAQ DCMO
        • FAQ Psychology
        • FAQ Port Wine Stain
      • Videos
        • Information
        • Promotion
        • Other
      • Documents
      • News
        • Latest news
        • Events
        • External conferences intro
        • Newsletters
    • Members
      • Registration
        • Membership registration
        • Become a donor
        • One time donation
      • Medical advice
        • Personal medical advice
        • International Patient Center
        • Medical diagnosis facts
      • Member conferences
        • Netherlands
        • Canada
        • USA
      • Family Days
      • Spring meeting days
      • Personal stories
      • Blogs
      • Be informed
        • Social media
        • Social media channels
        • Social media free?
        • Newsletter
        • Medical alarm
        • Visit Netherlands
      • Ronald McDonald vacation homes
      • Family messages
    • Activities
      • Genetic research
        • Participation
        • Status
      • Information folders
        • Request brochures/booklets
        • AVM folder
        • CMTC folder
        • DCMO folder
        • KTS folder
        • Siblings folder
        • Psychology folder
        • After the diagnosis brochure
        • Parents Support Guide
        • Teachers brochure
        • VASCA Magazine
        • Conversation health care provider folder
        • General Practitioner brochure
        • Patient journey
        • Patient included
      • Online services
      • Patient advocacy
        • Overview per country
        • Experiences patient advocates
        • Encouragement program
        • Become patient advocate?
        • Agenda October 2023
        • Grandparents
        • Way of working
        • Training patient advocate
        • Report PA training 2022
      • Webinars
        • Overview & registration webinars
        • Webinar reports
      • External conferences
        • Conference participation
        • CORD
        • EADV
        • Eurordis
        • Genetic Alliance
        • Global Skin Foundation
        • ICORD
        • ISSVA
        • NORD
        • VBF
        • Rare diseases day (Netherlands)
        • Other conferences
      • Community voice
      • Projects
    • Organisation
      • About our organisation
        • Board
        • contact
        • Advisory council
        • Annual reports
        • Financial committee
        • Policy plan
        • Anniversary booklet 25 years CMTC-OVM
        • Budgets
          • Budget 2023
          • Budget 2022
          • Budget 2021
          • Budget 2020
          • Budget 2019
        • Certifications
        • Code of conduct
        • Influence & participation
        • Impact & range
        • Complaints
        • Internal regulations
        • Conflict of interests
        • Act on Management and Supervision of Legal Entities (WBTR)
        • Proclaimer
      • Advisors
      • Ambassadors
      • Collaboration
      • Privacy
        • Your rights
        • Statement
        • Access control
        • Data registration
        • Your privacy, our concern
        • Secure e-mail
        • Privacy & security tips
        • Our infrastructure
      • Donations
      • Sponsor
        • sponsors
      • Volunteer
        • Our volunteers
        • Profiles
        • Experience Experts
    • Community
      • Log in
      • Registration
    • One time donation

    Archives

    Monthly Archive for: "April, 2022"
    Home » Archives for April 2022
     Webinar 12 February 2022 – Overgrowth and vascular malformations
     0
    By Lex van der Heijden
    In Webinar
    Posted 29-04-2022

    Webinar 12 February 2022 – Overgrowth and vascular malformations

    READ MORE
     03. DCMO folder
     0
    By Lex van der Heijden
    In Information folders
    Posted 29-04-2022

    03. DCMO folder

    READ MORE
     Approval alpelisib by FDA
     0
    By Lex van der Heijden
    In Latest news
    Posted 08-04-2022

    Approval alpelisib by FDA

    READ MORE
     Translation team Zuyd University of Applied Sciences 2022
     0
    By Lex van der Heijden
    In Latest news
    Posted 07-04-2022

    Translation team Zuyd University of Applied Sciences 2022

    READ MORE
     01. AVM folder
     0
    By Lex van der Heijden
    In Information folders
    Posted 01-04-2022

    01. AVM folder

    READ MORE
     04. KTS folder
     0
    By Lex van der Heijden
    In Information folders
    Posted 01-04-2022

    04. KTS folder

    READ MORE

    Follow us on

    Newsletter



    I agree to the processing of my personal data
    Over cmtc

    CMTC-OVM is a worldwide non-profit patient organisation based in the Netherlands. e

    Address

    CMTC-OVM
    Koninksweg 1
    7064 KH  Silvolde
    The Netherlands

    Other Links
    • Information folders
    • Member conferences
    • Family days
    • Personal stories
    • Patient advocacy
    • Pedia
    Partners
    © 2021 CMTC-OVM. All rights reserved Proclaimer Privacy Sitemap
    • Home
    • Members
    • Activities
    • Organisation
    • Community