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    • Home
    • Pedia
      • CMTC
        • Description
        • Photo gallery
        • Possible complications
        • Possible complications by location
        • Isolated and Classic CMTC
        • Laser treatment
        • Our long journey to the diagnosis CMTC
        • Abbreviations & definitions
        • Dr. van Lohuizen
        • CMTC articles
      • OVM
        • AV malformation
          • Surgical Resection of an Arteriovenous Malformation
        • Capillary malformation
        • CMTC (OVM)
        • CLOVES
        • Complex mixed malformation
        • Congenital hemangioma (NICH/RICH)
        • Diffuse Capillary Malformation with Overgrowth (DCMO)
        • Granuloma telangiectaticum
        • Hemangio-endothelioom
        • Infantile hemangioma
        • Klippel-Trenaunay
        • Lymphatic malformation
        • Port-wine stain
          • Young people with port-wine stains in high school
        • Stork bite
        • Sturge-Weber
          • The Effects of Surge Weber on Mouth and Teeth
        • Teleangiectasias
        • Tufted angioma
        • Venous malformation
        • Clinical features of vascular malformations and associated gene mutations
        • New Device Clears Veins in Cases of Serious Thrombosis
        • Multidisciplinary consultation
        • Treatment of Vascular Malformations with Interventional Radiology
        • Treatment 10%
        • Laser treatment OVM
      • Skin
        • Skin aging
        • Melanomas & moles
        • Skin therapy
        • UV radiation
      • Psychology
        • After birth
        • Reactions environment
        • State child
        • School and friends
        • After diagnosis
        • Potential impact of medical intervention on very young children
        • Anxiety and pain management in children
        • On the breach for a child-oriented approach
        • Medical supervision
        • Bullying
        • Learning to cope with your condition/vascular anomaly
        • Possible consequences
        • Acceptance
        • The beginning of the end of the relationship
        • Meet Chloe
        • Brother or sister ill
        • Live like an animal
        • Burden of disease
      • eHealth
        • Telehealth and medical diagnosis
        • Digital health
        • Virtual nurse
      • Genetics
        • The genetic cause of vascular malformations: an update
        • Genetics and vascular malformations
        • Reverse phenotyping in patients with capillary blood vessel abnormalities
        • One swallow doesn’t make spring (summer) yet
        • Searching for the genetic cause of vascular anomalies (such as CMTC)
        • CMTC and genetic mutations
        • Genetics glossary
      • Pedia other
        • Role of patient organisations in healthcare
        • European Patient Advocay Groups (ePAG’s)
        • European Reference Networks (ERN’s)
        • ISSVA classification
        • Decide together
        • Patient’s voice
        • Rare diseases barometer
        • New developments laser
        • Patient’s rights NL
        • Rating healthcare providers
        • Holistic person-centred care
        • State of the art activities rare diseases Europe
        • Sirolimus
          • Research for complications with sirolimus
          • Articles sirolimus
        • Alpelisib
          • Alpelisib approved by FDA for treatment of PROS
          • Alpelisib articles and video material
        • Foreign health care in Europe
    • Knowledge base
      • Links websites
        • European Reference Networks (ERN’s)
        • Skin diseases organisations
        • Other organisations
        • Patient websites
        • Collaboration
        • Vascular diseases organisations
        • Rare diseases organisations
        • Hospitals
      • FAQ’s
        • FAQ CMTC
        • FAQ DCMO
        • FAQ Psychology
        • FAQ Port Wine Stain
      • Videos
        • Information
        • Promotion
        • Other
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      • Presentations
        • Presentations CORD 2019
        • Presentations Eurordis 2019
        • Presentations Eurordis 2018
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        • External conferences intro
        • Newsletters
    • Members
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        • One-time donation
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        • Personal medical advice
        • International Patient Center
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        • Netherlands
          • Survey members conference 2022
        • Canada
        • USA
      • Family Days
        • Family Day 2023 information and registration
      • Spring meeting days
      • Personal stories
      • Blogs
      • Be informed
        • Social media
        • Social media channels
        • Social media free?
        • Newsletter
        • Medical alarm
        • Visit Netherlands
      • Ronald McDonald vacation homes
      • Family messages
    • Activities
      • Genetic research
        • Participation
        • Status
      • Information folders
        • Request brochures/booklets
        • AVM folder
        • CMTC folder
        • DCMO folder
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        • Siblings folder
        • Psychology folder
        • After the diagnosis brochure
        • Parents Support Guide
        • Teachers brochure
        • VASCA Magazine
        • Conversation health care provider folder
        • General Practitioner brochure
        • Patient journey
        • Patient included
      • Online services
      • Patient advocacy
        • Overview per country
        • Experiences patient advocates
        • Encouragement program
        • Become patient advocate?
        • Grandparents
        • Way of working
        • Training patient advocate
        • Report PA training 2022
      • Webinars
        • Overview & registration webinars
        • Webinar reports
      • External conferences
        • Conference participation
        • CORD
        • EADV
        • Eurordis
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        • Global Skin Foundation
        • ICORD
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        • Other conferences
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        • Contact
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        • Anniversary booklet 25 years CMTC-OVM
        • Budgets
          • Budget 2023
          • Budget 2022
          • Budget 2021
          • Budget 2020
          • Budget 2019
        • Certifications
        • Code of conduct
        • Influence & participation
        • Impact & range
        • Complaints
        • Internal regulations
        • Conflict of interests
        • Act on Management and Supervision of Legal Entities (WBTR)
        • Proclaimer
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      • Ambassadors
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    Archives

    Monthly Archive for: "January, 2023"
    Home » Archives for January 2023
     Special international friendships thanks to CMTC-OVM
     0
    By Lex van der Heijden
    In Blogs PA's
    Posted 29-01-2023

    Special international friendships thanks to CMTC-OVM

    READ MORE
     Presentation Prof. Dr. Laurence Boon – Diagnostic and Management Pathway for Venous Malformations
     0
    By Lex van der Heijden
    In Latest news
    Posted 21-01-2023

    Presentation Prof. Dr. Laurence Boon – Diagnostic and Management Pathway for Venous Malformations

    READ MORE
     Blog Katie Allen Jan. 2023
     0
    By Lex van der Heijden
    In Blog Katie Allen
    Posted 13-01-2023

    Blog Katie Allen Jan. 2023

    READ MORE
     Marco Dings passed away
     0
    By Lex van der Heijden
    In Family messages, Latest news
    Posted 05-01-2023

    Marco Dings passed away

    READ MORE

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