Special international friendships thanks to CMTC-OVM
Niklas and Eric are both seven years old and also both have the rare blood vessel disease DCMO (Diffuse Capillary Malformation with Overgrowth). It appears as spots on their legs and back and causes them to have growth abnormalities in their legs and internal organs. Niklas lives with his family in Austria – Eric lives […]
Presentation Prof. Dr. Laurence Boon – Diagnostic and Management Pathway for Venous Malformations
Presentation by one of our medical advisors Prof. Dr. Laurence Boon about ‘Diagnostic and Management Pathway for Venous Malformations’ (English).
Blog Katie Allen Jan. 2023
While I never felt like CMTC held me back from sports and other physical activities, there have been some challenges. With a 3cm leg length difference, I tend to trip and fall at the best of times, especially in activities I competed in as a teenager. Over the years, my balance has somewhat improved; but […]
Marco Dings passed away
On December 30, 2022, Marco Dings passed away at the age of 59. Marco was one of our early members and built our first website, among other things. In addition, he has performed numerous other information and communication technology activities for our organization. We wish Sanne, Alex, other loved ones and friends a lot of […]
