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Promotion

Video

One of the biggest problems that rare disease organizations are struggling with is reaching patients, families and caregivers. In this context, we have developed a series of promotional videos with the aim of providing people with quick insight into our activities.

Members’ conference 2024 in the Netherlands

Members’ conference 2022 in the Netherlands

https://vimeo.com/787116273
 

Eden personal experience

https://vimeo.com/567354337
 

Global skin conference 2019 Italy (incl. interview Lex van der Heijden)

https://www.youtube.com/watch?v=OmvZCSrdKoo&feature=youtu.be
 

Impression global members’ conference 2018

https://vimeo.com/334611984
 

Impression global member’s conference 2016

https://vimeo.com/195168668
 

During our global conference fresh stroopwafels!

https://vimeo.com/191449716
 

RTL/4/5 2014

https://vimeo.com/102441970
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