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Our promotional videos are intended to provide insight and thereby reach and help more patients, families and caregivers

One of the biggest problems that rare disease organizations are struggling with is reaching patients, families and caregivers. In this context, we have developed a series of promotional videos with the aim of providing people with quick insight into our activities.

Members conference 2022 in the Netherlands

Eden personal experience

Global skin conference 2019 Italy (incl. interview Lex van der Heijden)

Impression global member conference 2018

Impression global member conference 2016

During our global conference fresh stroopwafels!

RTL/4/5 2014