My name is Anja Fluijt and I am the mother of Niels born in 2004 with many spots throughout the body.
By an attending paediatrician, we received a referral to the Sofia Children’s Hospital in Rotterdam within 3 months, where Dr. Oranje gave the diagnosis CMTC.
For so long we are also a member of the association and we try to attend the meetings. Niels grows up as a healthy adolescent but is aware of his “spots”. In the meanwhile, the diagnosis has turned into “capillary malformations” but that is still fine in this association.
It would be nice if patients and certainly medical professionals could acquire more knowledge about these conditions.
As a mother, I want to work for that. In my daily life, I work as a nurse in a general hospital and am married to Co. Together we have two children: Elise and Lukas.
