For many years we have offered personal medical advice during our global members meeting in the Netherlands. During that meeting some of our medical specialists, mostly professors, are available to run free medical advice throughout the day. In recent years the number of medical advices during this day has greatly increased. By 2015, we had 20 medical advices, and even had to use two paralllel medical advisors to give everyone a personal medical advice. One of our medical advisors, Prof. Dr. Suzanne Pasmans, suggested at the end of our conference in 2015 to expand the medical advices and professionalize the research tracks. Below is the new approach beginning in 2016.

Simple Advice

A simple advice in this context is:

  1. When up to that point no complications arise.
  2. The patient and/or parents have questions.
  3. The diagnosis is known.
  4. It is a good idea to routinely, for example annually, a "maintenance medical advice."
  5. This consultation is carried out in a private room, for example, a reserved hotel room during the conference.

This medical advice is free of charge.

Complex Advice

A complex advice in this context is:

  1. When complications occur or have occurred.
  2. The patient and/or parents have questions around these complications.
  3. Still no diagnosis has been made
  4. This consultation is carried out in the Erasmus medical centre in Rotterdam within the special multidisciplinary team WEVAR on the Friday prior to the conference on Saturday in Leusden.

This advice, which often is (partly) reimbursed by health insurance. For patients within the European Union the S2 form should be used (contact your health insurance company). For patients outside the European Union consult your health insurance company).


For both medical advices:

  1. By November 1, the medical records should be available to our medical advisors. They are all doctors and are subject to the Dutch medical law of secrecy, etc.
  2. The reason and treatment demand for this consultation shall be clearly stated. A reason could be a  "second opinion."
  3. The patient must be prepared to undress (so that, for example, the patient can show asymmetry of the whole body).
  4. The medical data is submitted by the patient, or parents, by means of the form below.


Medical advice form HOT
Date 2018-02-11 09:33:07 File Size 173.08 KB Download 735 Download