Sharon Terry (USA)

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Sharon Terry (Genetic Alliance)

A personal story
Genetic Alliance

Sharon Terry is the director of the American Genetic Alliance non-profit organization.

She is the mother of two children with PXE and has given a touching TedX performance. We have known Sharon since 2005 and thanks to her we were able to meet representatives from the United States Senate several times with the goal of getting more attention for those with rare diseases.

TedX gig

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