Our projects
In addition to our standard activities such as organizing (online) member conferences, information provision and patient advocacy, we also carry out all kinds of projects. Here too we are transparent. More information
Marleen (Netherlands)
Hello. I am Marleen. I am 28 years old (2020) and live with my husband and son of 0 years old in Zaandam. I am a speech therapist in my own speech therapy practice and in a nursing home. I love my job and I really enjoy my work. When I introduce myself to someone, […]
Do you want to become a patient advocate?
One of our most important core activities is patient advocacy. We do our best to help our (international) members in all kinds of ways and to provide them with information. Unfortunately, as a Dutch organization, we cannot offer local support to patients, families and healthcare providers in all countries. This can be arranged by people […]
Your online privacy, our concern!
We do everything we can to protect your privacy as much as possible! We still see unsecured websites of patient organizations that maintain a member administration. Your data is not safe there with all the consequences! We had an external ‘security scan’ carried out by a company on November 2, 2020. Over the years, our […]
