For patients with CMTC and Other Vascular Malformations

CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC, their families, and stimulate scientific research into these disorders.
LATEST NEWS AND ACTIVITIES

18-03-2024

Blog Katie Allen March 2024

14-03-2024

Program and registration Family Weekend 2024 available!

13-03-2024

Rare disease day 2024

13-03-2024

Our Patient Advocate Erika (South Africa) 2nd place Eurordis Photo contest 2024

UPCOMING EVENTS

May 2024
June 2024
July 2024
September 2024
October 2024
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PROF. DR. JAN PETER BALKENENDE

Former Prime Minister, External Senior Advisor to EY, Professor Erasmus University, Ass. Partner Hague Corporate Affairs.

DR. YANN LE CAM

CEO Eurordis

personal stories

“As if she already understands that it is part of her.”

SANNE

“I have never seen myself as different from other children”

EDEN QUINE-TAYLOR

“Enjoy what she can do and try not to worry”

MARCIA BRANDS

Your support is powerful
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REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

Twitter feed

InforMonday! Do you know what ERN's are? CMTC-OVM is affiliated with both @SKIN and @VASCERN. Read the article via https://bit.ly/43gfNzV

#ERNeu #EADV #PROS #VASCA #VASCERN #PIK3CA #vascular #VenousMalformations #webinar #KTS #CLOVES #DCMO #ERN-Skin #CMTC #CMTCOVM #IADPO

So humbled for having received this Lifetime Achievement Award by #LE&RN for our work on #lymphedema and lymphatic #malformations. I hope the numerous projects being run all over the world will bring us to novel therapies for these #chronic diseases. #vascern #deduveinstitute

#ResearchHighlight: Our VASCA Working Group paper on the diagnosis and management of #VenousMalformations offers expert consensus patient pathways to help clinicians toward efficient diagnostics and management of patients. Give it a read👉https://bit.ly/49BZW0X

#rarediseases

our community

Membership in our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with fellow sufferers is crucial! Membership in our organization can be reimbursed by your health insurer.

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