Rare disease day 2025
On February 28, 2025, during the National Rare Disease Day Event at Soestdijk Palace, the prestigious Rare Angel Awards were presented to Karin Veldman, Rianne Oostenbrink, and 3FM Serious Request. National Rare Disease Day Event The National Rare Disease Day Event takes place every last day of February as part of International Rare Disease Day. […]
Rare disease day 2024
This year, our Patient Advocates from Canada, Austria and South Africa were active. On the final day of February, this year that was the 29th, Rare Disease Day is organised by the VSOP, the Dutch National Patient Alliance for Rare and Genetic Diseases. During the evening programme, the Rare Angel Awards were presented to three […]
Rare Diseases Day Netherlands 2023
On Tuesday, February 28, 2023, the Rare Angel Awards were presented in Amsterdam to three award winners because of their special significance for people with rare disorders. The Awards have been presented annually since 2009. Rare Angel in the category ‘patient or loved one’ is Marjolein van Kessel because of her tremendous effort for patients […]
Rare Diseases Day Netherlands 2022
Traditionally, Rare Disease Day is organized worldwide on the last day of February. We have also been doing this for years. We have also developed material ourselves and we also make it available to our Patient Advocates so that they can make their own version for their country. Former Royal Palace Soestdijk Our organization is […]
Rare diseases day Netherlands 2021
We have been actively participating in the global rare diseases day for years. Unfortunately, in 2021, due to the COVID-19 virus a ‘real’ day can’t be organised, but the rare diseases day will become a virtual day in 2021. Rare Disease Day takes place on the last day of February each year. The main objective of Rare […]
Rare diseases day Netherlands 2020
World Rare Disease Day took place on 29th February 2020 and for the twelfth time, VSOP was involved in its organization. This year, VSOP organized the meeting ‘Rare – Stronger Together’ in Madurodam, The Hague. Over 100 participants were inspired by presentations from patient representatives and others. Topics such as the psychosocial consequences of a […]
Rare diseases day Netherlands 2019
During the international Rare Disease Day, every year on the last day of February, awareness is raised for people with rare disorders. These events take place in many countries. This way, it is hoped that rare diseases will become more publicised. In the Netherlands, the VSOP (Association for Cooperating Parents and Patients Organization) organises the […]
Rare diseases day Netherlands 2018
During the International Rare Disease Day, attention is paid annually to people with rare diseases on the last day of February. Events take place in many countries. In this way, it is hoped to bring more rare diseases into publicity. In the Netherlands, the VSOP (Association of Cooperating Parents and Patients Organization) organizes the annual […]
Rare diseases day Netherlands 2017
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. 28 February 2017 marked the tenth international Rare Disease Day. On and around this day hundreds […]
Rare diseases day Netherlands 2016
Rare Disease Day takes place on the last day of February each year. This year 29 February was Rare Disease Day.The main objective of this special day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The day was launched in Europe in 2008 by […]
