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Home
Pedia
Vascular malformations
AV malformation
Surgical Resection of an Arteriovenous Malformation
Capillary malformation
CLOVES
CMTC
Description
Photo gallery
Possible complications
Possible complications by location
Isolated and Classic CMTC
Laser treatment
Our long journey to the diagnosis CMTC
Abbreviations & definitions
Dr. van Lohuizen
CMTC articles
Complex mixed malformation
Congenital hemangioma (NICH/RICH)
Diffuse Capillary Malformation with Overgrowth (DCMO)
Granuloma telangiectaticum
Hemangio-endothelioom
Infantile hemangioma
Klippel-Trenaunay
Lymphatic malformation
Stork bite
Laser in dermatology: past, present and future
Sturge-Weber
Young people with port-wine stains in high school
The Effects of Sturge Weber on Mouth and Teeth
Teleangiectasias
Tufted angioma
Venous malformation
Port-wine stain
Young people with port-wine stains in high school
Multidisciplinary consultation
Clinical features of vascular malformations and associated gene mutations
New Device Clears Veins in Cases of Serious Thrombosis
Treatment of Vascular Malformations with Interventional Radiology
Treatment 10%
Laser treatment OVM
Medication
Sirolimus
Exciting Interim Results from Phase III Trial VASE: Sirolimus Shows Promise in Managing Vascular Malformations
Research for complications with sirolimus
Articles sirolimus
Alpelisib
Alpelisib approved by FDA for treatment of PROS
Alpelisib articles and video material
Psychology
Dermatology from a broader view: mind-body connection
Skin diseases and psychological aspects
Living with a birthmark
After birth
Reactions environment
State child
School and friends
Parents Support Guide
After the diagnosis brochure
Potential impact of medical intervention on very young children
Anxiety and pain management in children
On the breach for a child-oriented approach
Medical supervision
Bullying
Learning to cope with your condition/vascular anomaly
Possible consequences
Acceptance
The beginning of the end of the relationship
Meet Chloe
Brother or sister ill
Live like an animal
Burden of disease
Skin
Tattoo complications
Skin aging
Melanomas & moles
Skin therapy
UV radiation
eHealth
eHealth
Telehealth and medical diagnosis
Digital health
Virtual nurse
Genetics
Current state of targeted treatments for vascular malformations
The genetic cause of vascular malformations: an update
Genetics and vascular malformations
Reverse phenotyping in patients with capillary blood vessel abnormalities
One swallow doesn’t make spring (summer) yet
Searching for the genetic cause of vascular anomalies (such as CMTC)
CMTC and genetic mutations
Genetics glossary
Pedia other
Added value patient organisations for medical professionals
Dermatology from a broader view: mind-body connection
Role of patient organisations in healthcare
European Patient Advocay Groups (ePAG’s)
European Reference Networks (ERN’s)
ISSVA classification
Decide together
Patient’s voice
Rare diseases barometer
New developments laser
Patient’s rights
Rating healthcare providers
Holistic person-centred care
State of the art activities rare diseases Europe
Foreign health care in Europe
Links websites
European Reference Networks (ERN’s)
Skin diseases organisations
Other organisations
Patient websites
Collaboration
Vascular diseases organisations
Rare diseases organisations
Hospitals
FAQ’s
FAQ CMTC
FAQ DCMO
FAQ Psychology
FAQ Port Wine Stain
Videos
Information
Promotion
Other
News
Latest news
Events
External conferences intro
Newsletters
Members
Registration
Membership registration
Become a donor
One time donation
Medical advice
Personal medical advice
Diagnosis and treatment in the Netherlands
Medical diagnosis facts
Member conferences
Members’ conference 2024 Information and Registration
Netherlands
Canada
USA
Family weekends
Family Days
Spring meeting days
Personal stories
Interviews
Blogs
Blog – Ami Hataya (Japan/Singapore)
Blog – Arianna Faro (USA)
Blog – Katie Allen (Canada)
Be informed
Social media
Social media channels
Social media free?
Newsletter
Medical alarm
Visit Netherlands
Unwind and reconnect with your loved ones in Ronald McDonald vacation homes
Family messages
Activities
Genetic research
Participation
Status
Information folders
Request brochures/booklets
AVM folder
CMTC folder
DCMO folder
KTS folder
Siblings folder
Psychology folder
After the diagnosis brochure
Parents Support Guide
Teachers brochure
VASCA Magazine
Conversation health care provider folder
General Practitioner brochure
Patient journey
Patient included
Online services
Patient advocacy
Overview per country
Experiences patient advocates
Encouragement program
Become patient advocate?
Agenda October 2023
Grandparents
Way of working
Training patient advocate
Report PA training 2023
Report PA training 2022
External conferences
Conference participation
CORD
EADV
Eurordis
Genetic Alliance
Global Skin Foundation
ICORD
ISSVA
NORD
VBF
Rare diseases day (Netherlands)
Other conferences
Community voice
Projects
Webinars
Overview & registration webinars
Webinar reports
Organisation
About our organisation
Board
contact
Advisory council
Annual reports
Financial committee
Anniversary booklet 25 years CMTC-OVM
Policy plan
Budgets
Certifications
Code of conduct
Influence & participation
Impact and range
Complaints
By-laws
Internal regulations
Conflict of interests
Act on Management and Supervision of Legal Entities (WBTR)
Proclaimer
Advisors
Ambassadors/supporters
Collaboration
Privacy
Your rights
Statement
Access control
Data registration
Your privacy, our concern
Secure e-mail
Privacy & security tips
Our infrastructure
Become a donor
Sponsor
sponsors
Volunteer
Our volunteers
Profiles
Experience Experts
Donate now!
Menu
Home
Pedia
Vascular malformations
AV malformation
Surgical Resection of an Arteriovenous Malformation
Capillary malformation
CLOVES
CMTC
Description
Photo gallery
Possible complications
Possible complications by location
Isolated and Classic CMTC
Laser treatment
Our long journey to the diagnosis CMTC
Abbreviations & definitions
Dr. van Lohuizen
CMTC articles
Complex mixed malformation
Congenital hemangioma (NICH/RICH)
Diffuse Capillary Malformation with Overgrowth (DCMO)
Granuloma telangiectaticum
Hemangio-endothelioom
Infantile hemangioma
Klippel-Trenaunay
Lymphatic malformation
Stork bite
Laser in dermatology: past, present and future
Sturge-Weber
Young people with port-wine stains in high school
The Effects of Sturge Weber on Mouth and Teeth
Teleangiectasias
Tufted angioma
Venous malformation
Port-wine stain
Young people with port-wine stains in high school
Multidisciplinary consultation
Clinical features of vascular malformations and associated gene mutations
New Device Clears Veins in Cases of Serious Thrombosis
Treatment of Vascular Malformations with Interventional Radiology
Treatment 10%
Laser treatment OVM
Medication
Sirolimus
Exciting Interim Results from Phase III Trial VASE: Sirolimus Shows Promise in Managing Vascular Malformations
Research for complications with sirolimus
Articles sirolimus
Alpelisib
Alpelisib approved by FDA for treatment of PROS
Alpelisib articles and video material
Psychology
Dermatology from a broader view: mind-body connection
Skin diseases and psychological aspects
Living with a birthmark
After birth
Reactions environment
State child
School and friends
Parents Support Guide
After the diagnosis brochure
Potential impact of medical intervention on very young children
Anxiety and pain management in children
On the breach for a child-oriented approach
Medical supervision
Bullying
Learning to cope with your condition/vascular anomaly
Possible consequences
Acceptance
The beginning of the end of the relationship
Meet Chloe
Brother or sister ill
Live like an animal
Burden of disease
Skin
Tattoo complications
Skin aging
Melanomas & moles
Skin therapy
UV radiation
eHealth
eHealth
Telehealth and medical diagnosis
Digital health
Virtual nurse
Genetics
Current state of targeted treatments for vascular malformations
The genetic cause of vascular malformations: an update
Genetics and vascular malformations
Reverse phenotyping in patients with capillary blood vessel abnormalities
One swallow doesn’t make spring (summer) yet
Searching for the genetic cause of vascular anomalies (such as CMTC)
CMTC and genetic mutations
Genetics glossary
Pedia other
Added value patient organisations for medical professionals
Dermatology from a broader view: mind-body connection
Role of patient organisations in healthcare
European Patient Advocay Groups (ePAG’s)
European Reference Networks (ERN’s)
ISSVA classification
Decide together
Patient’s voice
Rare diseases barometer
New developments laser
Patient’s rights
Rating healthcare providers
Holistic person-centred care
State of the art activities rare diseases Europe
Foreign health care in Europe
Links websites
European Reference Networks (ERN’s)
Skin diseases organisations
Other organisations
Patient websites
Collaboration
Vascular diseases organisations
Rare diseases organisations
Hospitals
FAQ’s
FAQ CMTC
FAQ DCMO
FAQ Psychology
FAQ Port Wine Stain
Videos
Information
Promotion
Other
News
Latest news
Events
External conferences intro
Newsletters
Members
Registration
Membership registration
Become a donor
One time donation
Medical advice
Personal medical advice
Diagnosis and treatment in the Netherlands
Medical diagnosis facts
Member conferences
Members’ conference 2024 Information and Registration
Netherlands
Canada
USA
Family weekends
Family Days
Spring meeting days
Personal stories
Interviews
Blogs
Blog – Ami Hataya (Japan/Singapore)
Blog – Arianna Faro (USA)
Blog – Katie Allen (Canada)
Be informed
Social media
Social media channels
Social media free?
Newsletter
Medical alarm
Visit Netherlands
Unwind and reconnect with your loved ones in Ronald McDonald vacation homes
Family messages
Activities
Genetic research
Participation
Status
Information folders
Request brochures/booklets
AVM folder
CMTC folder
DCMO folder
KTS folder
Siblings folder
Psychology folder
After the diagnosis brochure
Parents Support Guide
Teachers brochure
VASCA Magazine
Conversation health care provider folder
General Practitioner brochure
Patient journey
Patient included
Online services
Patient advocacy
Overview per country
Experiences patient advocates
Encouragement program
Become patient advocate?
Agenda October 2023
Grandparents
Way of working
Training patient advocate
Report PA training 2023
Report PA training 2022
External conferences
Conference participation
CORD
EADV
Eurordis
Genetic Alliance
Global Skin Foundation
ICORD
ISSVA
NORD
VBF
Rare diseases day (Netherlands)
Other conferences
Community voice
Projects
Webinars
Overview & registration webinars
Webinar reports
Organisation
About our organisation
Board
contact
Advisory council
Annual reports
Financial committee
Anniversary booklet 25 years CMTC-OVM
Policy plan
Budgets
Certifications
Code of conduct
Influence & participation
Impact and range
Complaints
By-laws
Internal regulations
Conflict of interests
Act on Management and Supervision of Legal Entities (WBTR)
Proclaimer
Advisors
Ambassadors/supporters
Collaboration
Privacy
Your rights
Statement
Access control
Data registration
Your privacy, our concern
Secure e-mail
Privacy & security tips
Our infrastructure
Become a donor
Sponsor
sponsors
Volunteer
Our volunteers
Profiles
Experience Experts
Donate now!
Canada
CMTC-OVM Canada introduction
Leden conferenties
Members’ conference 2024 Information and Registration
Netherlands
CMTC-OVM Members conference Netherlands 2022
CMTC-OVM Member conference Netherlands 2021
CMTC-OVM Member Conference Netherlands 2020
USA
Canada
In 2015 an independent CMTC-OVM Canada organization has been established.
CMTC-OVM Member Conference Canada 2017
22-04-2020
CMTC-OVM Member Conference Canada 2016
22-04-2020