• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

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Upcoming Events

Feb
28

28-02-2019 0909:0202 - 0909:0202

May
17

0909:0505 17-05-2019 - 0505:0505 18-05-2019

Jun
7

0909:0606 07-06-2019 - 0505:0606 08-06-2019

Jul
6

06-07-2019 0909:0707 - 1111:0707

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Twitter

Thursday, 21 February 2019 09:04
CMTC-OVM @hugodejonge Vrijwilligersparticipatie zou ook financieel beloond kunnen worden. Wij als patiëntenorganisaties word… https://t.co/m4G2MZpJSD
Saturday, 16 February 2019 10:04
CMTC-OVM Our members have selected the Efteling again as location for our global Familyday in the Netherlands on the 6th Ju… https://t.co/UYetnxCs69
Monday, 11 February 2019 06:15